|Our diabetic notebook|
Our biggest "hack" - which isn't really a hack, or a way to beat any system. Pen and paper.
We use a notebook to communicate with the school health office. Of course I stop by every morning and every pick up to discuss where Erin is on the blood sugar scale and anything that they should be aware of. Communication is key to managing any disease.
Despite our discussions, we write everything needed in a notebook. There are three people that work in the health office and while all are extremely dedicated to caring for the children, there is no way you could ever speak with all three at one time. What is in the notebook?
- Morning blood sugar and bolus so everyone can be aware of how much insulin was given.
- An itemized list of food in snacks and lunch, and how many carbs are in each item. This way if everything is not eaten, a nurse can make a good estimate on the bolus.
- We also share other information, or the nurses use it to remind me if they need more supplies, or there is an upcoming change in the school schedule. Like that one day where they have early snack that always gives us a little glitch.
It's a really helpful way to have a quick go to for a brief history of the day without having to open the disease management program in the computer. And while it may seem a bit manual with so much information in the pump, nurses are taught to write things down and so I think this comes naturally to them.
Our health office likes it so much, they have recommended the notebook system for a newly diagnosed Type 1. For smaller children, you can even make it a fun thing to go pick out what kind of notebook they want to use for their diabetic record at school. Although I haven't tried it yet, as time goes on, it might just become a good educational tool as my son learns to read and take more control over their disease.